Families of 
Spinal Muscular Atrophy
Canada  


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P.O. Box 97   
Rivers, Manitoba R0K 1X0   
(800) 866-0016

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Families of Spinal Muscular Atrophy Canada
P.O. Box 97
Rivers, Manitoba R0K 1X0 
(800) 866-0016
http://www.CureSMA.ca

 
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News and Updates
Annual SMA picnic in Chilliwack, BC - see photos and story.
3rd Annual Angel Gala for SMA - Milton, Ontario - Nov 15, 2008 - sold out!
Highlights of the June 2008 FSMA Family and Professionals Conference in Boston
Standard of Care for SMA - Family Guide (April 2008) and Journal of Child Neurology Standard of Care Consensus Statement (Aug 2007)

Improved Survival Rates for Type 1 SMA. Survival in spinal muscular atrophy type 1 patients has increased in recent years, in relation to the growing trend toward more proactive clinical care. Great news!
If you or your child are newly diagnosed with SMA,  please email bettylou@curesma.ca for an information package on SMA. Also: see Coping with a Diagnosis of SMA for extra resources.
International Spinal Muscular Atrophy Patient Registry - please register to be involved in any upcoming clinical trials

Katie's Lullaby CD
this song will melt your heart
 

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